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As most of you already know, on July 28 my brother had an Arterio-Venous Malformation (AVM) which ruptured in his brain and had to undergo emergency brain surgery to remove it. We've created this website to give everyone brief updates on his status because it has been difficult to keep everyone up-to-date. There aren't words to describe the gratitude we feel for the outcry of support and love that has been shown for Noah. We also appreciate all of the positive energy and prayer that has been directed his way -- and truly believe it is helping him.

Thursday, August 13, 2009

Thursday


Noah just before his discharge from Western Medical and transfer to St. Jude's



St. Jude's Medical Center in Fullerton


St. Jude's is a very nice, modern facility -- and the therapy Noah is receiving is phenomenal. Every day he undergoes about 3 hours of therapy -- including occupational therapy, neuropsychology, medical social work, speech therapy, and physical therapy. His progress continues to astound everyone around him, albeit he has some serious work to do.

Noah is still unable to move his right toes, and has some numbness and pain in his right foot. As a result, we took an xray of his right leg, which came back healthy. The doctor believes this could mean one of two things -- nerve damage or a herniated disc -- but more likely the former. One of the doctors theorized that he did damage to his leg when he fell as a result of his rupture (16 days ago), but because we were so concerned about keeping Noah alive, we didn't catch the leg problem.

Noah got his stitches removed, and an updated CT Scan, which was compared with a scan taken a couple days ago back at Western Medical Center. Albeit this morning had us very scared because his swelling and pain seemed up, the doctor gave us very positive news tonight. Noah's swelling is down, and he appears to remain free from hydrocephalus -- let's pull for that trend to continue!

Noah still is missing a piece of his skull about the size of your hand that will have to be put back in (see below). We had heard that this might not happen for many months, but because Noah's swelling is down significantly, we might be able to put it back in sooner than anticipated -- of course Dr. Tabrizi will make that decision.


This is before Noah's stitches were removed.

This afternoon, the speech therapist had Noah write the names of his mother, father, and brother. To be honest, he had a very tough time with Mom and Dad, but when it got to me, he put the pen to the paper and wrote B-A-L-L-S, looked up at me and laughed.

I'm starting to suspect that Noah is enjoying himself. He refused to eat the hospital food tonight and had me go pick up a bunch of sushi, guilt-tripped my mother into about 2 hours of back-scratching, watched about 3 hours of television, and forced me and others to massage his un-toe-nail-clipped feet...while leveraging his inability to move his toes. Suspect.

goooooo NOAH!

7 comments:

  1. Yes...he's workin it!!!!

    Hey Balls....you are the best brother a Kung Fu Panda could ever have!

    You were awesome on stage last night..so proud of you!!!
    Love you all down there
    xoxox
    JJ

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  2. I just know that the rehab staff is going to fall in love with Noah - I always enjoy working with young, motivated patients that had great support systems - you guys are amazing (family and Noah) Keep reminding Noah the chant of the physical therapist is "No pain - No Gain" - Keep us updated on his progress (thank you Adam for the incredible blog) - we keep praying for recovery, and for Noah AND his family through this ordeal - Noah remember - always be nice to your therapist :)

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  3. Bob and I continue to send our love and positive energy. The pictures are sobering -- not that we need anything to remind us how critically serious this is -- but also inspirational. Keep on keepin' on. Go Noah go!!! Hugs and love to all of you in Fullerton. C'MON TEAM NOAH!!! Love, Judie and Bob oxoxoxoxoxoxo

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  4. It lights us up to see Noah smile! Keep up the great work Noaaah!!

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  5. Its good to see that noah still has that awesome sense of humor we all love so much. It's also been great to know what's going on with him without having to harass everyone for daily updates, so thanks for that and we all send our love and support.

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  6. Noah keep up the good work.
    Adam, you are doing such a wonderful service keeping us all informed and allowing us to send positive energy to Noah and the whole family during this challenging time.
    Love and Love
    Whitney Vanderford's mom

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  7. What wonderful and glorious news Noah! You look amazing and strong...keep up the awesome hard work. Every day is one day closer to 100% healing - YOU CAN DO IT :). All the Meyer girls and Maui send lots of love and aloha to you all - Adam, keep up the great updates and stories... they sustain those of us who simply cannot be there but only in spirit. All our love and aloha - Aunty Luana, Uncle Ian, Keolamau and Noa Pulama

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