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As most of you already know, on July 28 my brother had an Arterio-Venous Malformation (AVM) which ruptured in his brain and had to undergo emergency brain surgery to remove it. We've created this website to give everyone brief updates on his status because it has been difficult to keep everyone up-to-date. There aren't words to describe the gratitude we feel for the outcry of support and love that has been shown for Noah. We also appreciate all of the positive energy and prayer that has been directed his way -- and truly believe it is helping him.

Monday, August 10, 2009

Monday

This is how today started...

Dad: "Noah, what day is it today?"

Noah: "I can't remember."

Dad: "Can you say Monday?"

Noah: "Mon..."

Dad: "Mun-Daay"

Noah: "Mun-dee?"

Dad: "Noah, when you can say all seven days of the week, I'll buy you the new Blackberry."

Noah: (looking at me): "Let's do this!"

(30 seconds later)

Noah: "Monday, Tuesday, Wednesday, Thursday, Friday, Saturday, Sunday. Gimme my free ****!"

Noah's progress is staggering. He still has a long way to go, but it is truly remarkable and breathtaking to watch him re-boot from hour to hour. He has aphasia -- and is needing to re-learn everything from reading to large parts of vocabulary and named retrieval -- but he is improving noticeably every day. Most of his memory seems intact; but he has a very hard time expressing himself. As a result, he sometimes gets frustrated and, for now, we still need to limit the number and length of visits.

Although Noah can move his left toes with ease, he is having a very hard time moving his right toes -- that said, today he began physical therapy... and we are thrilled to share another photo that says it all:




Watching Noah taking his first steps again was unreal -- he was absolutely fearless.

It's looking like Noah could be transferred to St. Jude's Medical Center in Fullerton on Wednesday for rehabilitation services. This is obviously another enormous step forward.

Today, Vicky -- an ICU/ER nurse who was there when Noah first came in -- visited Noah and was in total disbelief. Like many other doctors and nurses, she believes Noah is a miracle. As my mother says, "there are no imperfect miracles" and we believe and pray that Noah will make a full recovery.

Words cannot describe our joy, gratitude, and love for all of you.

10 comments:

  1. Unf******g believable!!!! did u fast forward a few weeks or what! Amazing!!!!!!
    Go Noah
    Go Noah
    Go Noah!!!!!!!!
    Maybe he is pulling your chain calling you Louie!!!!!!
    Offer him a new car Adam!!!!

    LOL
    Keep sending the updates....
    :)
    Auntie

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  2. Keep on Keepin on ...ths is such wonder-filled news...and once again..you all remain in our familes hearts, prayers and we continue sending positive thoughts....So so so very much LOVE your way...XOOXOXOXOXOXOX

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  3. Thank you, Adam, for the latest report. Bob and I were waiting on pins and needles. Now we can sleep. We experienced pure joy at the picture. If we were able to identify mere words to express our feelings, they would be woefully inadequate to contain the full scope of our unmitigated elation. We are, quite simply, humbled by Noah's courage and your family's complete, utter and unconditional support. And we are honored to be a part of the circle of light that surrounds you all. Go Noah go. Love, Judie and Bob

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  4. What a wonderful picture! A million more words to describe Noah’s strength and determination, and an incredible testament to the love and support that surround him. We can’t wait to hear more news of Noah’s continued rapid progress toward complete recovery.

    Our love to all!

    The Sokolik’s

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  5. I think that I should say something for the many many friends Noah and his family have who are watching and hoping in their individual ways for his complete recovery--but haven't written in. The heartfelt reporting is an outstanding comment to family, dedication, spirituality and love. For all of us to all of you, we are with Noah every day and want to thank you for including us in the life and the miracle. Paul, Merrily & Quentin

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  6. Maybe the last person Noah would expect to be checking in on him, but this is Quincy from good ol' Crane School. i heard the news about a week ago and was given this website minutes ago. i don't if the tears are from laughter or fear, but i suppose i'm just overwhelmed by all of this. It looks like you could get through this on your own, Noah, but if you're in need of any more support, you've got plenty from up here in the bay. I can't wait for the day you look back at these pictures and stories and crack up over it. Keep pushing Noah...

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  7. Every morning I wake...having said my prayers throughout the day for you, sweet and precious Noah. And each day, my prayers continue to be answered. I have lost count telling people the good news of your steady recovery. I ask everyone to continue to keep you close in prayer and ask for complete healing. Time...you have lots of it, Noah...rejoice in this rebirth...thanks for the updates Adam and the pictures, they truly are worth more than you know - Sending warm aloha and love, Aunty Luana, Uncle Ian, Keolamau and Noa Pulama

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  8. Adam, thank you so much for these updates...we're so happy to hear Noah is recovering quickly and already walking and cracking jokes only 2 weeks after brain surgery!! Like Noa said, Noah's the man! Anyway, we're praying that his progress will continue to a full recovery. Hope to see you all soon...love Suling and Andrew

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  9. Wow! Double Wow! Noah, you are breaking all expectations, dude! But keep right on doing that!
    Aphasia is tough - have been through it with my Mom - You have such an incredible and understanding support team with you. Humor will continue to be the lighting rod of healing - keep laughing - all - Louie too! It's amazing what a little carrot dangling can do for the brain...
    What joy and inspiration is coming from this site - thank you Noah. This is a gift for us all
    love,
    Rod

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  10. Noah,
    Katie and I just returned from Europe. We were following your progress through this web site. Adam, thank you for your news, hope and humor. noah, we are so relieved that you are progressing along so well. You always have been tenacious.
    So from your "Baby Group" friends, we send our love. Bobbie Kinnear (the Mom) and Katie Kinnear

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